Growing up with MSUD – an interview with 8-year-old Carter Coleman & his parents Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of […]
Caring for Rare Podcast: Season 1, Episode 2 READ MORE
Raising Young Children With PKU – An Interview With Lacy Shaffer And Julie Bolduc Defilippo Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors
Caring for Rare Podcast: Season 1, Episode 1 READ MORE
Nutricia is by your family’s side following your baby’s diagnosis of an inborn error of metabolism: our Periflex®/Anamix® Early Years metabolic infant formulas are used and trusted in 25 countries, and we’re here with all-around support to give your little one the best start in life. Nutricia is committed to supporting your little one with
The Early Years: Giving Your Little One the Best Start in Life READ MORE
Calcium is a mineral best known for its role in bone health. In fact, the body stores more than 99% of calcium in bones and teeth to keep them strong.1 Calcium also plays a key role in other important functions of the body. Your body uses calcium to help move your muscles and your blood,
Calcium & Your Child’s Diet READ MORE
Written in collaboration with Katie Maguire, PKU Adult and 2nd grade schoolteacher Lunch anxiety? Anxious that your child will not eat her lunch or drink formula at school? Here are some quick ideas that you can do to prepare and hopefully ease some anxiety: Pack the lunchbox and practice eating at home; make sure your child
10 Low Protein Lunch Tips for School READ MORE
“When I got the call, I couldn’t process what I was hearing. It was so hard.” Lacy thinks back to the moment when she learned that her second child, a baby girl named Aspen, was diagnosed with Phenylketonuria (PKU). PKU is a rare inherited metabolic disorder that means a person must avoid foods naturally high
A family’s journey in learning about PKU through baby Aspen READ MORE
Monitoring your baby’s blood phenylalanine (PHE) levels is an important part of managing PKU and helping your child thrive. Keeping blood PHE levels within the target range leads to normal growth and brain functions. If blood PHE levels are too high over an extended period, it may affect the brain. If PHE levels are too
Monitoring Your Baby’s PHE Levels READ MORE
When your child has a metabolic disorder, the idea of daycare can feel stressful and overwhelming. Rest assured that young children with metabolic disorders go to daycare every day and receive excellent care! A child with a special diet is nothing new to daycare centers nowadays. Daycares typically have protocols in place to ensure your
Sending Your Child to Daycare with a Special Diet READ MORE
To help provide an educational activity, we are proud to share a printable copy of My PKU Activity Book. This activity book is full of fun and educational coloring pages, word searches and other games to keep your school-aged child and their siblings engaged and learning about Phenylketonuria (PKU). Examples from My PKU Activity Book:
Learning about PKU through fun activities for kids READ MORE
Brady and Quinn drink PhenylAde® GMP Drink Mix and start owning their PKU diets Do you remember the moment you got the call about your child having an inborn error of metabolism? In this video, Allyson Mullen shares her heartfelt story about that moment. Her sons Brady and Quinn received classical Phenylketonuria (PKU) diagnoses, which
PKU Doesn’t Slow Down the Mullen boys READ MORE
