Low Pro Living Support Blog

You’ve come to right place to learn more about inborn errors of metabolism like PKU or MSUD, explore diet management tips, and hear inspiring stories. From big moments, like starting college to little ones like what to eat for dinner, we have tips and ideas to help you along the way.

Please note: information presented in our blogs is for educational purposes only and is in no way intended to replace the care, advice, and medical supervision of your metabolic team. Always consult your metabolic healthcare team with questions you have and before you make any changes to your or your loved one’s diet or condition management.

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Restaurant Food Guides: Common Low Protein Options on Restaurant Menus

/ Living with Metabolic Disorders, Low Protein Diet Support

Just because you have a metabolic condition like phenylketonuria (PKU), maple syrup urine disease (MSUD), homocystinuria (HCU), or another inborn error of metabolism disorder doesn’t mean you can’t order restaurant food. Here are helpful tips for navigating common restaurant menus in the U.S. and Canada and finding low protein options that fit your diet. Remember […]

Restaurant Food Guides: Common Low Protein Options on Restaurant Menus READ MORE

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Helping Families Find Formula Coverage: Nutricia Navigator

/ Formula, Low Protein Diet Support

Obtaining health insurance coverage for metabolic formula can be stressful in our current times. You may have experienced challenges in getting your formula covered, such as loss of coverage due to an employment change, dropped coverage due to age, and the list goes on. We understand how complicated it can be. That’s why Nutricia Navigator

Helping Families Find Formula Coverage: Nutricia Navigator READ MORE

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Sending Your Child to Daycare with a Special Diet

/ Living with Metabolic Disorders, Parent Corner

When your child has a metabolic disorder, the idea of daycare can feel stressful and overwhelming. Rest assured that young children with metabolic disorders go to daycare every day and receive excellent care! A child with a special diet is nothing new to daycare centers nowadays. Daycares typically have protocols in place to ensure your

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How to Explain Your Metabolic Disorder to Friends

/ Living with Metabolic Disorders, Low Protein Diet Support

Friends are so important to have in your life. Deciding to tell people that you have an inborn error of metabolism – such as phenylketonuria (PKU), maple syrup urine disease (MSUD), homocystinuria (HCU), or another condition – is a personal decision. We’re here to help if you feel like opening up to your friends about

How to Explain Your Metabolic Disorder to Friends READ MORE

PKU activity book cover

Learning about PKU through fun activities for kids

/ Parent Corner, Understanding Metabolic Disorders

To help provide an educational activity, we are proud to share a printable copy of My PKU Activity Book. This activity book is full of fun and educational coloring pages, word searches and other games to keep your school-aged child and their siblings engaged and learning about Phenylketonuria (PKU). Examples from My PKU Activity Book:

Learning about PKU through fun activities for kids READ MORE

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