Low Pro Living Support Blog

You’ve come to right place to learn more about inborn errors of metabolism like PKU or MSUD, explore diet management tips, and hear inspiring stories. From big moments, like starting college to little ones like what to eat for dinner, we have tips and ideas to help you along the way.

Please note: information presented in our blogs is for educational purposes only and is in no way intended to replace the care, advice, and medical supervision of your metabolic team. Always consult your metabolic healthcare team with questions you have and before you make any changes to your or your loved one’s diet or condition management.

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Introducing NutriciaMetabolics.com

From little moments to big ones, we’re here for you Nutricia is proud to launch our newly redesigned NutriciaMetabolics.com website, formerly known as MedicalFood.com. NutriciaMetabolics.com has been rebuilt with you in mind. Our aim is to provide the Metabolic community with support from the littlest moments in life to the biggest ones. Here are a […]

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Aspen and Finn seated on the ground

The Early Years: Giving Your Little One the Best Start in Life

Nutricia is by your family’s side following your baby’s diagnosis of an inborn error of metabolism: our Periflex®/Anamix® Early Years metabolic infant formulas are used and trusted in 25 countries, and we’re here with all-around support to give your little one the best start in life. Nutricia is committed to supporting your little one with

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PKU Family

A family’s journey in learning about PKU through baby Aspen

“When I got the call, I couldn’t process what I was hearing. It was so hard.” Lacy thinks back to the moment when she learned that her second child, a baby girl named Aspen, was diagnosed with Phenylketonuria (PKU). PKU is a rare inherited metabolic disorder that means a person must avoid foods naturally high

A family’s journey in learning about PKU through baby Aspen READ MORE

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Restaurant Food Guides: Common Low Protein Options on Restaurant Menus

Just because you have a metabolic condition like phenylketonuria (PKU), maple syrup urine disease (MSUD), homocystinuria (HCU), or another inborn error of metabolism disorder doesn’t mean you can’t order restaurant food. Here are helpful tips for navigating common restaurant menus in the U.S. and Canada and finding low protein options that fit your diet. Remember

Restaurant Food Guides: Common Low Protein Options on Restaurant Menus READ MORE

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Helping Families Find Formula Coverage: Nutricia Navigator

Obtaining health insurance coverage for metabolic formula can be stressful in our current times. You may have experienced challenges in getting your formula covered, such as loss of coverage due to an employment change, dropped coverage due to age, and the list goes on. We understand how complicated it can be. That’s why Nutricia Navigator

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bookshelf with books and toys at daycare

Sending Your Child to Daycare with a Special Diet

When your child has a metabolic disorder, the idea of daycare can feel stressful and overwhelming. Rest assured that young children with metabolic disorders go to daycare every day and receive excellent care! A child with a special diet is nothing new to daycare centers nowadays. Daycares typically have protocols in place to ensure your

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How to Explain Your Metabolic Disorder to Friends

Friends are so important to have in your life. Deciding to tell people that you have an inborn error of metabolism – such as phenylketonuria (PKU), maple syrup urine disease (MSUD), homocystinuria (HCU), or another condition – is a personal decision. We’re here to help if you feel like opening up to your friends about

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PKU activity book cover

Learning about PKU through fun activities for kids

To help provide an educational activity, we are proud to share a printable copy of My PKU Activity Book. This activity book is full of fun and educational coloring pages, word searches and other games to keep your school-aged child and their siblings engaged and learning about Phenylketonuria (PKU). Examples from My PKU Activity Book:

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Kristin Rapp with medal

Running on Inspiration: Learn how Kristin manages her HCU disorder during marathon training

12 marathons, 19 half marathons, 100-mile bike rides, and triathlons: Kristin Rapp’s athletic achievements are impressive. What’s more is that Kristin has Homocystinuria (HCU) and manages the low protein diet while training. How does she do it? What keeps her motivated? We sat down with Kristin to answer this and more. Kristin was diagnosed with

Running on Inspiration: Learn how Kristin manages her HCU disorder during marathon training READ MORE

Pregnancy and PKU 1st trimester Cover

Low protein diet tips to help you get through the 1st trimester of pregnancy

Congratulations on your pregnancy! These are exciting times. Don’t forget, working closely with your clinic is important before, during and after pregnancy. Your clinic can provide the best guidance for you and your baby. Once your blood phenylalanine (PHE) levels are well-controlled and you become pregnant you enter the first of three trimesters associated with

Low protein diet tips to help you get through the 1st trimester of pregnancy READ MORE

Full length of marathon runners having a race through nature

Sports Nutrition Basics for Active Individuals with Disorders of Amino Acid Metabolism – Part 2

We talked about general topics of sports nutrition in our last blog — let’s now discuss what is important BEFORE, DURING and AFTER exercise for people with an inborn error of amino acid metabolism such as Phenylketonuria (PKU), Maple Syrup Urine Disease (MSUD) or Homocystinuria (HCU). Before getting started, it is important to know that

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Mother and daughter at the finish line of a race

Sports Nutrition Basics for Active Individuals with Disorders of Amino Acid Metabolism – Part 1

Participating in sports and fitness provides many benefits for health and wellbeing—and this holds true for many people with inherited metabolic disorders. Plenty of members of the metabolic community run races, dance, and play team sports to stay fit. James, a college sophomore with Phenylketonuria (PKU), for example, plays club soccer. (Read our interview with

Sports Nutrition Basics for Active Individuals with Disorders of Amino Acid Metabolism – Part 1 READ MORE

What is GMP?

You’ve likely seen ‘GMP’ on a Phenylketonuria (PKU) or Tyrosinemia (TYR) formula label or heard about it through your dietitian. But what exactly is it and why is it getting so popular? GMP can be used as a protein source for PKU and Tyrosinemia formulas. GMP, short for glycomacropeptide, is a peptide – a type of

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Education Tools to Help you Understand PKU and other Metabolic Disorders

Do you have questions about inborn errors of metabolism like PKU, MSUD, or MMA/PA? We’re here to support you with easy-to-understand education tools. As part of our Nutricia Connect support platform, we offer easy-to-understand education materials that provide information on complex disorders like PKU, MSUD, and others. We’re here to support you as you educate

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