Friends are so important to have in your life. Deciding to tell people that you have an inborn error of metabolism – such as phenylketonuria (PKU), maple syrup urine disease (MSUD), homocystinuria (HCU), or another condition – is a personal decision. We’re here to help if you feel like opening up to your friends about […]
How to Explain Your Metabolic Disorder to Friends READ MORE
Being off the PKU diet leads to high phenylalanine (PHE) levels and is associated with a variety of symptoms, such as feeling tired, irritable and forgetful. This is how Rene felt before he went back on the PKU diet as an adult. We met up with Rene in his home in San Diego, CA to
Find out how Rene returned to the PKU diet READ MORE
Dining out can seem tough on a low protein diet, but it’s not impossible. Here are some helpful tips for going out, including what to look out for and how to prepare for a fun time on the town. Plan ahead as much as possibleIf you can, view the menu online ahead of time. Call
Tips for Dining Out on a Low Protein Diet READ MORE
When you reach your third trimester (after 26 weeks) you are now in the final countdown. With only 3 months to go, you will notice significant changes in your body and PKU diet. For some, your permitted protein intake may increase. Continue to be in close contact with your metabolic clinic. If you are not
3rd Trimester Support for Maternal PKU READ MORE
Week 13 through 26 is considered the second trimester of your pregnancy. View PKU & Pregnancy: What to Expect blog here View Low Protein Diet Tips To Help You Get Through The 1st Trimester Of Pregnancy blog here During this time, you will continue to work closely with your clinic as only they can provide
Maintaining PHE levels during your 2nd trimester of pregnancy READ MORE
Congratulations on your pregnancy! These are exciting times. Don’t forget, working closely with your clinic is important before, during and after pregnancy. Your clinic can provide the best guidance for you and your baby. Once your blood phenylalanine (PHE) levels are well-controlled and you become pregnant you enter the first of three trimesters associated with
Low protein diet tips to help you get through the 1st trimester of pregnancy READ MORE
We talked about general topics of sports nutrition in our last blog — let’s now discuss what is important BEFORE, DURING and AFTER exercise for people with an inborn error of amino acid metabolism such as Phenylketonuria (PKU), Maple Syrup Urine Disease (MSUD) or Homocystinuria (HCU). Before getting started, it is important to know that
Participating in sports and fitness provides many benefits for health and wellbeing—and this holds true for many people with inherited metabolic disorders. Plenty of members of the metabolic community run races, dance, and play team sports to stay fit. James, a college sophomore with Phenylketonuria (PKU), for example, plays club soccer. (Read our interview with
The holidays can be an exciting time of year. However, they can be a bit challenging for someone on a restricted diet as most festivities center around food. This blog focuses on tips for managing a restricted diet during the holiday season. The most important thing to do is plan ahead. The more you know
Tips for a Low Pro Thanksgiving READ MORE
The journey to motherhood, when you have Phenylketonuria (PKU), should begin with your metabolic clinic. It is essential to work with your clinic before, during and even after pregnancy. Only your clinic can provide the best guidance to ensure the best outcome for you and your baby. They will work with you to ensure well-controlled
PKU & Pregnancy: What to expect READ MORE
