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The Importance of Following A PKU Diet In Adulthood

Phenylketonuria (PKU) is a rare inherited metabolic disorder that affects the body’s ability to metabolize a specific amino acid called phenylalanine (PHE). People with PKU have a deficiency in the enzyme needed to break down phenylalanine, which leads to a buildup of this amino acid in the body. A buildup of PHE can be harmful,

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Navigating Halloween Fun: A Guide for Children on a Low Protein Diet

Halloween is a fun time for kids who get to dress up in costumes, see spooky decorations, and get lots of yummy treats. However, if you eat a low-protein diet because of a special health condition, Halloween can be a bit tricky. In this blog post, we’ll share some helpful tips and fun ideas to

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Path leading to college building

Tips from college student on how to maintain a low protein diet while at school

Reflections from a rising sophomore managing PKU and a busy schedule This time last year as James Fryer was beginning his first year of college at Willamette University, he knew he was heading into a big life transition. Some of the adjustments proved more stressful than he anticipated. “Always remembering, on my own, to have

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Caring for Rare Podcast: Season 1, Episode 5

Parents of children and children with PKU, MSUD and HCU share how they talk about their metabolic disorder Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of

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