Living with Metabolic Disorders

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Kristin Rapp with medal

Running on Inspiration: Learn how Kristin manages her HCU disorder during marathon training

12 marathons, 19 half marathons, 100-mile bike rides, and triathlons: Kristin Rapp’s athletic achievements are impressive. What’s more is that Kristin has Homocystinuria (HCU) and manages the low protein diet while training. How does she do it? What keeps her motivated? We sat down with Kristin to answer this and more. Kristin was diagnosed with […]

Running on Inspiration: Learn how Kristin manages her HCU disorder during marathon training READ MORE

Full length of marathon runners having a race through nature

Sports Nutrition Basics for Active Individuals with Disorders of Amino Acid Metabolism – Part 2

We talked about general topics of sports nutrition in our last blog — let’s now discuss what is important BEFORE, DURING and AFTER exercise for people with an inborn error of amino acid metabolism such as Phenylketonuria (PKU), Maple Syrup Urine Disease (MSUD) or Homocystinuria (HCU). Before getting started, it is important to know that

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Mother and daughter at the finish line of a race

Sports Nutrition Basics for Active Individuals with Disorders of Amino Acid Metabolism – Part 1

Participating in sports and fitness provides many benefits for health and wellbeing—and this holds true for many people with inherited metabolic disorders. Plenty of members of the metabolic community run races, dance, and play team sports to stay fit. James, a college sophomore with Phenylketonuria (PKU), for example, plays club soccer. (Read our interview with

Sports Nutrition Basics for Active Individuals with Disorders of Amino Acid Metabolism – Part 1 READ MORE

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