Spring is a great time to get outside and plan some fun summer adventures. Following a low-protein diet and drinking PKU formula (or other metabolic formulas) should not stand in your way of making fun summer plans or enjoying the warm spring air. Whether you’re new to an active lifestyle or an experienced adventurer, […]
Low Pro Living Tips for Getting Active READ MORE
Hi, my name is Julia and I have PKU. I want to take a moment and urge young women who are contemplating pregnancy to talk with their healthcare provider. Getting levels under control prior to pregnancy is of the utmost importance to the health of your future child. Having a good pregnancy starts with finding
A Message to All Women With PKU Considering a Future Pregnancy READ MORE
Halloween is a fun time for kids who get to dress up in costumes, see spooky decorations, and get lots of yummy treats. However, if you eat a low-protein diet because of a special health condition, Halloween can be a bit tricky. In this blog post, we’ll share some helpful tips and fun ideas to
Navigating Halloween Fun: A Guide for Children on a Low Protein Diet READ MORE
Tips and wisdom from a parent of a PKU 7th grader “I feel like I’m pulled in four different directions all summer!” says Heather Bomar of Brentwood, Tennessee, in describing her busy but fun summer season. Her four children, including 12-year-old Ellis who has classical Phenylketonuria (PKU), do a variety of activities over the summer.
Helpful ways to prepare for back-to-school for a 7th grader with PKU READ MORE
Reflections from a rising sophomore managing PKU and a busy schedule This time last year as James Fryer was beginning his first year of college at Willamette University, he knew he was heading into a big life transition. Some of the adjustments proved more stressful than he anticipated. “Always remembering, on my own, to have
Tips from college student on how to maintain a low protein diet while at school READ MORE
Parents of children and children with PKU, MSUD and HCU share how they talk about their metabolic disorder Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of
Caring for Rare Podcast: Season 1, Episode 5 READ MORE
Parents of children with PKU, MSUD and HCU share their experiences with adapting to a special low protein diet Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories
Caring for Rare Podcast: Season 1, Episode 4 READ MORE
Accepting And Thriving With HCU – An Interview With The Sullivan Family Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of metabolism. Our
Caring For Rare Podcast: Season 1, Episode 3 READ MORE
Written by Guest Blogger, Julia Orsi, Adult and Mom with PKU.
How to Have an Awesome Low Protein Holiday Meal READ MORE
Growing up with MSUD – an interview with 8-year-old Carter Coleman & his parents Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of
Caring for Rare Podcast: Season 1, Episode 2 READ MORE
