Spring is a great time to get outside and plan some fun summer adventures. Following a low-protein diet and drinking PKU formula (or other metabolic formulas) should not stand in your way of making fun summer plans or enjoying the warm spring air. Whether you’re new to an active lifestyle or an experienced adventurer, […]
Low Pro Living Tips for Getting Active READ MORE
Hi, my name is Julia and I have PKU. I want to take a moment and urge young women who are contemplating pregnancy to talk with their healthcare provider. Getting levels under control prior to pregnancy is of the utmost importance to the health of your future child. Having a good pregnancy starts with finding
A Message to All Women With PKU Considering a Future Pregnancy READ MORE
Halloween is a fun time for kids who get to dress up in costumes, see spooky decorations, and get lots of yummy treats. However, if you eat a low-protein diet because of a special health condition, Halloween can be a bit tricky. In this blog post, we’ll share some helpful tips and fun ideas to
Navigating Halloween Fun: A Guide for Children on a Low Protein Diet READ MORE
Tips and wisdom from a parent of a PKU 7th grader “I feel like I’m pulled in four different directions all summer!” says Heather Bomar of Brentwood, Tennessee, in describing her busy but fun summer season. Her four children, including 12-year-old Ellis who has classical Phenylketonuria (PKU), do a variety of activities over the summer.
Helpful ways to prepare for back-to-school for a 7th grader with PKU READ MORE
Reflections from a rising sophomore managing PKU and a busy schedule This time last year as James Fryer was beginning his first year of college at Willamette University, he knew he was heading into a big life transition. Some of the adjustments proved more stressful than he anticipated. “Always remembering, on my own, to have
Tips from college student on how to maintain a low protein diet while at school READ MORE
Parents of children and children with PKU, MSUD and HCU share how they talk about their metabolic disorder Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of
Caring for Rare Podcast: Season 1, Episode 5 READ MORE
Parents of children with PKU, MSUD and HCU share their experiences with adapting to a special low protein diet Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories
Caring for Rare Podcast: Season 1, Episode 4 READ MORE
Accepting And Thriving With HCU – An Interview With The Sullivan Family Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of metabolism. Our
Caring For Rare Podcast: Season 1, Episode 3 READ MORE
Written by Guest Blogger, Julia Orsi, Adult and Mom with PKU.
How to Have an Awesome Low Protein Holiday Meal READ MORE
Growing up with MSUD – an interview with 8-year-old Carter Coleman & his parents Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of
Caring for Rare Podcast: Season 1, Episode 2 READ MORE
Chef Natalie explains: “How many of you know what this is? If you don’t, it’s a jackfruit. Jackfruit is a relative of figs and breadfruit. It grows in the tropical areas of places like Asia, Brazil and Africa. It’s technically a fruit but it has a very meaty texture. It’s low in protein and can
Raising Young Children With PKU – An Interview With Lacy Shaffer And Julie Bolduc Defilippo Nutricia North America’s new podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors
Caring for Rare Podcast: Season 1, Episode 1 READ MORE
Nutricia North America’s podcast – Caring for Rare – explores what life is like with a rare metabolic disorder such as phenylketonuria (PKU), maple syrup urine disease (MSUD), and homocystinuria (HCU). Episodes feature families’ personal stories of inborn errors of metabolism. Our guests on the show share their difficulties at diagnosis, changes they made to
Caring for Rare Podcast READ MORE
From little moments to big ones, we’re here for you Nutricia is proud to launch our newly redesigned NutriciaMetabolics.com website, formerly known as MedicalFood.com. NutriciaMetabolics.com has been rebuilt with you in mind. Our aim is to provide the Metabolic community with support from the littlest moments in life to the biggest ones. Here are a
Introducing NutriciaMetabolics.com READ MORE
Can you remember the last time you checked the expiration dates on the food you have in your pantry or in the back of your refrigerator? If you can’t remember, this might be a good time to go and check. We often get questions on using expired product and if it’s still safe. Our advice
Do I Really Need to Follow the Expiration Date? READ MORE
Calcium is a mineral best known for its role in bone health. In fact, the body stores more than 99% of calcium in bones and teeth to keep them strong.1 Calcium also plays a key role in other important functions of the body. Your body uses calcium to help move your muscles and your blood,
Calcium & Your Child’s Diet READ MORE
Just because you have a metabolic condition like phenylketonuria (PKU), maple syrup urine disease (MSUD), homocystinuria (HCU), or another inborn error of metabolism disorder doesn’t mean you can’t order restaurant food. Here are helpful tips for navigating common restaurant menus in the U.S. and Canada and finding low protein options that fit your diet. Remember
Restaurant Food Guides: Common Low Protein Options on Restaurant Menus READ MORE
When your child has a metabolic disorder, the idea of daycare can feel stressful and overwhelming. Rest assured that young children with metabolic disorders go to daycare every day and receive excellent care! A child with a special diet is nothing new to daycare centers nowadays. Daycares typically have protocols in place to ensure your
Sending Your Child to Daycare with a Special Diet READ MORE
Friends are so important to have in your life. Deciding to tell people that you have an inborn error of metabolism – such as phenylketonuria (PKU), maple syrup urine disease (MSUD), homocystinuria (HCU), or another condition – is a personal decision. We’re here to help if you feel like opening up to your friends about
How to Explain Your Metabolic Disorder to Friends READ MORE
Dining out can seem tough on a low protein diet, but it’s not impossible. Here are some helpful tips for going out, including what to look out for and how to prepare for a fun time on the town. Plan ahead as much as possibleIf you can, view the menu online ahead of time. Call
Tips for Dining Out on a Low Protein Diet READ MORE
12 marathons, 19 half marathons, 100-mile bike rides, and triathlons: Kristin Rapp’s athletic achievements are impressive. What’s more is that Kristin has Homocystinuria (HCU) and manages the low protein diet while training. How does she do it? What keeps her motivated? We sat down with Kristin to answer this and more. Kristin was diagnosed with
We talked about general topics of sports nutrition in our last blog — let’s now discuss what is important BEFORE, DURING and AFTER exercise for people with an inborn error of amino acid metabolism such as Phenylketonuria (PKU), Maple Syrup Urine Disease (MSUD) or Homocystinuria (HCU). Before getting started, it is important to know that
Participating in sports and fitness provides many benefits for health and wellbeing—and this holds true for many people with inherited metabolic disorders. Plenty of members of the metabolic community run races, dance, and play team sports to stay fit. James, a college sophomore with Phenylketonuria (PKU), for example, plays club soccer. (Read our interview with
One of the first things you learn about PKU is that it requires a diet consisting of a special PKU formula and foods low in protein. It’s natural to wonder why the formula is needed. Why can’t you just follow a diet low in protein and skip the formula? Let’s start with why protein is
Why can’t I just follow a low protein diet? READ MORE
